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Your Role and Rights as a Carer

your rights as a working carer 

 knowledge and skills for caring

Your role as a carer is a demanding but a rewarding one.  There will be times when you need to talk to someone about how you feel, about funny things that have happened, about things that you have shared with your cared for person and about any problems you have experienced.   There are local support groups to offer a listening ear and help with practical issues you may have.  There will be people who are in the same boat as you, will understand and will not make judgements about your circumstances.

Organisations to contact if you need someone to talk to.

Samaritans offer confidential emotional support with trained and experienced volunteers.  Local contact 02476 678678 for an opportunity to talk if you are having an emotional crisis.

The British Association for Counselling and Psychotherapy can provide a list of local counsellors and psychotherapists.  They can provide a counselling service for you as the carer or for the person who may have just had a diagnosis of dementia.

Healthtalkonline has developed an online database of interviews with people on a wide range of health related topics.  These interviewees talk about how they feel being a carer for a person with dementia.  You can watch a video or read the transcripts.

If, as a carer, you need to make an offical complaint, you are advised to visit your local Citizens Advice Bureau.  The trained volunteers will be able to help you with any forms or letters you need to write.  They know how to address your complaint so that you get the best possible response.  They can support you at every step on the way to resolving your problem.

The Alzheimer's Society has produced a range of factsheets to support the carer in their role. These can be accessed through the national website.

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